Crickets
Those crickets you’ve been reading, yeah that’s because that’s been what I was hearing until recently from OHSU. Last week I saw in the span of 2 days an; Immunologist/Rheumatologist and an Infectious Disease Expert.
I am proud to report despite bad past choices I do not have an Infectious Disease. I had some lab work done by the Rheumatology folks and I have am negative for Rheumatoid Arthritis which is good. The also did an x-ray of my hand and found progressive shortening of my fingers (wtf?) which apparently has to do with Reynaud’s Syndrome which they diagnosed on the spot due to the fact that my hands were ice cold in a 75 degree room.
The news is that the Immunology guys think that CVID is back on the table and the Infectious Disease guy may have lent some credence to this belief as he referred to my CVID tests indicating at minimum an IgG subclass deficiency, I never heard back from the Hematology guy on the Pneumococcal titers so I assume that was the issue that popped up, a quick googling says it would be an IgG Subclass 2 deficiency. Snazzy.
So, the Immunology guys want to potentially put me on IVIG therapy and see what happens (works for me, nothing like filling me with drugs/meds/blood and seeing what happens).
I have another colonoscopy on Sept 24th (this will make 3 if you’re counting at home). I am going to wager a decision about what to do next will be made after that procedure.
Cheers.