YMMFI

It’s been awhile since I posted anything. I’ve been busy fighting with Blue Cross to get the IVIG treatment approved and it finally happened. I’ll receive my first infusion  as a split dose on February 8th and 9th.

It’s late but I plan on writing more soon about advocating for your own health care. It’s not just about this one battle but the battle that has taken nearly 3 years to the day to receive a reasonable diagnosis that everyone agrees with and treatment started.

One interesting thing I’ve managed to get a hold of during this most recent encounter with OHSU is my Immunology records. While most of the notes are short and curt, it almost seems as if they are as confused as everyone has been about what’s wrong given the conflicting information that my blood tests have revealed. They always seem to want to blame smoking on my increased White Blood Count, however historically it doesn’t hold water as a good theory, they don’t have access to the previous medical records that I do, I’ve looked at the blood counts and even when I smoked more than I do now, the counts were much lower.